Showing posts with label sick. Show all posts
Showing posts with label sick. Show all posts

Wednesday, March 22, 2017

3/22/17- Weekend Naps

So weekends are pretty awesome, I think most people would agree.  I can leave work behind and spend blissful time with family and friends.  And, I can also nap when Jack takes his nap.  As his parents, we try to make sure to leave open a couple of hours on weekends for Jack to take a nap. This is part of his schedule M-F at preschool/daycare, and we varied from it once. ONCE. And it was a disaster. So many tears from me, and from Jack, and his really weird refusal to go sleep at 10 pm that night when bed time is usually 8:30 pm.  I'm not saying we have to lay him down right at 1 pm for every nap, but we do need be home within a half hour or so of that nap window.

As someone with an autoimmune disease, I'm very thankful that my son takes a nap and that we can give that excuse to leave a party or a luncheon or whatever.  Because truth is, I need that nap. A party or a luncheon or whatever, really zaps my energy. While I think about napping every day of the work week (A (work) day in the life of RA), I actually take that nap on weekends (most times). And I have the perfect excuse, my toddler son!  I don't have to feel like the lame sicko that I know, and anyone close to me, knows I am.

There's usually no timer on my weekend naps, as Bobby will watch Jack if I nap longer than Jack, but I do find than more than a hour leaves me more tired and groggy than I originally was.  Also, if I am doing more than one thing on a Saturday, like 2 birthday parties, and I don't really get a chance to nap, I've found a little green tea around 3 pm can restore some of that energy.  But a nap is my preferred energy refresher on the weekends. And might as well, after all, it's the weekend!

Here's a typical Saturday for me:

8:00 AM: Jack is up. Jack may have woken up at 7:15 am, but he likes to lay in bed for a half hour if he can. Guess he got that from me. Bobby's been up since 7:00 am because week day schedules die hard. I'm debating whether or not to get up.  My fingers hurt slightly, so I decide to go back to sleep.

8:30 AM:  I can't really fall back asleep, so I get up.  Jack's watching a cartoon, and I get to sit next to him on the couch. Bobby and I talk about going to breakfast, but I know we won't go to our most favorite breakfast place.  It's right next to a bookstore that has a train set, which means one of us will be with Jack at the bookstore (because Jack has to play with that train set) while the other parent is scarfing breakfast at the restaurant. I also have to remind Bobby that I have to wait a half hour to eat (part of the requirements for my first pill of the day).

9:00 AM:  We end up eating breakfast at home. Sometimes I remember to take my vitamins; sometimes I don't.  It's the weekend! (I know, I know: your body doesn't care what day of the week it is).

10:30 AM: We make it out the door to go to our weekend activity: party, science museum, lunch, play date, etc. I really don't know where the 1-2 hours go in between breakfast and leaving the house. I think we have a tiny weeny black hole in our house.  Anyway, we usually have a good time at said weekend activity.

1:30 PM: I tell Bobby I'm going to work on my writing or tasks, like laundry, but then I usually go lay down for a nap.  I swear up and down my nap will only be an hour. Bobby ask if he should wake me.  Sure, I say.

3:30 PM: Bobby tries to wake me; I brush him off with some good grunts.

4:00 PM: I hear that Jack is up. Keep napping.

4:30 PM: Ok, ok, I'm up.  Blah, I napped too long.  I just want to watch movies and order pizza for dinner.

6:00 PM: We order pizza.  Or we have a dinner engagement to go to, so I force myself to go out.  Or on a really good day, I feel up for a restaurant that has an outdoor play area (like Chandler Mall-- their outdoor square has really cool lawn games).  I really enjoy the chance to play with Jack at the outdoor play area or watching Cars with him on the couch (for the 100th time; thank goodness Cars is a really good movie and makes me laugh every time we watch it).

8:30 PM: Jack goes to bed.  I think about joining him.

10:30 PM: Woo hoo!  I stayed up, go me, I'm not completely lame! And, Bobby and I finally finished watching recorded TiVo episodes of Downtown Abbey (yeah, we have some old stuff on the TiVo that we never really get around to watch). Time for bed- do I wash my face or not?  Screw it, I'm tired.  Take my night time pills. Then, it's lights out. Night, night!

Seriously, can it get any better than that?  I love my weekends.  I'm well rested and so happy on the weekends.  I've never related more to an orange cat than when Mondays roll around. I have to say good-bye to all that happiness and all that fantastic napping.  It sharks. So, I wish you a happy weekend and wonderful (weekend) naps!  I'm off to nap...






Wednesday, February 22, 2017

2/23/17- Happy E-Week: Where Does Time Go?!

The last time I posted to this blog was almost a month ago, holy shark (batman)! And here's the cliche, where did the time go?! I guess most of it went to Jack, Bobby, friends, family, work, the usual stuff. Although, some not so usual stuff happened too. I went to a conference! I gave a presentation at that conference! I did an author visit to Jack's preschool! I had to cancel another school visit because Jack was sick! Jack spent 2 nights in a row coughing!

So the last one is not fun for anyone, but especially Jack. He got some kind of nasty cold, although colds this time of year are not unusual for our household. He has had a hard time sleeping, with hour long cough spouts at 2 am. We've done humidifier, Vick's, Zarbee's, Tylenol/Ibuprofen (only when fever was present, which was once theses past few days thankfully), essential oils--the only thing that works for his night time coughing fit is waiting it out. The doctor said this illness appears to be viral, so we can't antibiotic it (I want to reassure you  and myself that the doctor verified that his lungs sound fine and ears look clear). The 2 am wake up calls feel like infancy all over again, where we are all walking, sleep-deprived zombies the next day.

Don't despair too much for our little guy though. During the day, he plays, eats, etc. like there's nothing wrong. Just a little runny nose, so he still wants to go run around on the playground and ride his trike and all the normal 2 year old stuff. I wish I had more sick time off from work or no work deadlines (a report is due to our customer by end of month, got it done though!) because I fully want to dedicate myself to Jack's healing. Reality is I can't. I have to remotely log in and get shark done (as well as not burn all my vacation/sick time) while he naps or watches "Cars" for the fiftieth time.

Poor Kid

It's a little stressful, as most working parents know.  In fact, I think any parent, whether they work in (ie stay at home) or outside of the home, knows just how stressful a sick kid is. We know the cold will end, but the time between contracting it and it going away, well, it makes life more interesting. And like I said early, I want nothing more to do than to fully commit myself to Jack's recovery, but this week was bad timing for a cold. I was supposed to go to a middle school and give a speech on how awesome engineering for Engineers' Week (E-Week), but I had to cancel to take care of Jack. I will always put Jack above giving a speech, but I do feel I let down a lot of students yesterday. Although, they're middle schoolers, so there's a chance they don't care. Still, cancelling an obligation like that, well it's hard.  I feel like I let down those kids, their teacher, and my profession.

In uplifting news though, I got to do my first author visit (where an author goes to a school, reads their book and/or gives a presentation)!  And the best part of my first visit was that it was with Jack's preschool!  Most of the preschoolers seemed to enjoy me reading "Annie Aardvark, Mathematician", and when I got to Jack's class (the last class of the visit), Jack was so confused as to why I was there. He was like, oh it's time to go? Cool, let me just grab my blanket. Wait, why is everyone sitting down around my mommy? Why is she starting to read Annie? But he sat down right next to me and helped his class start of the counting (which is in the book). It was so funny and cute. And now he asks for me to read Annie all the time. :)

Look, I'm Presenting at a Conference

I also went to my annual engineering love-fest conference the weekend of February 10th, and I presented there too!  My presentation went really well, at least that's what my engineering friends told me. :) And I sold a couple of books! Mostly, I had a really good time, and this conference always renews my interest to remain in this gosh shark profession (engineering)! I want to be an engineer when I grow up (for the most part; I'd really like to do so at a new company, see previous BAW posts)!

I'll be at E-Day (at the Arizona Science Center) this Saturday, which also does a good job of renewing my interest in the profession, as part the Greater Phoenix Area's E-Week Celebration. Tons of engineering organizations will be at E-Day, doing lots of cool hands on STEM experiments. I'll be at the SWE booth, and SWE will be making slime with the kids who stop by our booth.  If you live in the Phoenix area, please stop by the SWE booth, say hi, and make some slime!

Also, just in time for E-Week, check out my Goodreads Giveaway (below)!  It starts February 26 and ends March 5. You'll have the chance to win 1 of 5 signed books!

Happy E-Week everyone!




Goodreads Book Giveaway

Annie Aardvark, Mathematician by Suzie Olsen

Annie Aardvark, Mathematician

by Suzie Olsen

Giveaway ends March 06, 2017.
See the giveaway details at Goodreads.
Enter Giveaway

Friday, January 6, 2017

1/6/17- Don't Get Sick in Engineering (or other industries for that matter)

Welcome New Year!  I'm rearing and ready to go!  I'm ready to bring you this PSA: Whatever you do, do not get sick in Engineering.  I don't mean a cold or flu that goes away after a couple of weeks, I mean a chronic illness.  Being sick will hurt your career in engineering. And most likely in other industries as well, but today my focus is on the industry I work in, engineering and my observations. 

Engineering is competitive.  Don't be fooled by the stereotype of the mild-mannered nerd; we're out for intellectual blood in this industry.  Got a B+ on your Calc II test? Ha, I got an A-! Got a job at a government contractor? Ha, I got a job at the Fortune 500 Silicon Valley tech giant!  The best one (in my opinion), the not so subtle brag about how hard you've been working. Man, I'm wiped from working 50 hours this week.  Yeah, me too dude, those 60 hours I worked, they were killer. We get into pissing matches about how our company is willing to take advantage of our desire to beat out the other guy. I mean, overtime.  We get into pissing matches about overtime (companies would never exploit us, never). 

Side note to engineering managers: if you ever need to motive your workforce to work overtime, just say your star pupil is already doing 50 hours a week, even if they're not. End of side note.   Sure, there are a few humble engineers, who aren't competitive and ambitious (not that either is bad per say), but it is rare to find that engineer who thinks that teachers or waiters have harder jobs than they do.  Math decathlon is a sport, and the winner matters-- engineers can be competitive, as the next academically smart smug intellect. Myself included (when I was a hostess at Chili's in college, studying engineering, I thought I was way too good for this job; that job probably brought me just as much stress, maybe even more, than my current job. Have you ever had to sit people at Chili's on a Friday night in the early aught? It's a logistics nightmare, parenthesis ramble over). 

Early in my engineering career, I joked with a friend and colleague that one day I'll be VP of this company.  He joked, not if I beat you there first.  I wasn't completely arrogant, I knew that one day would be 20+ years down the road, but I had ambition.  I got told I was smart and capable, receiving good performance reviews those first couple of years.  Both my friend and I should now be project managers within our organization, if we are continue on our path to VP.  Neither of us are PMs.  Him, probably because he's Hispanic (which is a post for another day) and me, probably because I'm a chronically ill female (the female part is also a post for another day).  

Here's the part of the story where if you want, you can call me a whiny little shark. Suzie, there are tons of sick people who succeed every day in engineering; you just need to suck it up, you big baby. That's your decision to call me whatever, but it's my decision is to speak about my observations and truth. Plus, I've already told myself plenty of times to suck it up, so it wouldn't be anything new to hear you call me that. I've already beat you to the punch (I was first to do it, na, na, boo, boo, competitive engineer strikes again!).

Alright now that we got that out of our systems, let's move forward with this story.  I got really sick in 2007, see other blog posts for more details, and it took until 2008 to learn that I had Rheumatoid Arthritis.  And also in 2007, I was this close to being fired from my job/company.  Somehow I didn't, and here's probably the one cool thing my company has done for me over the years, they helped me go on to FMLA (to protect my job) and as I slowly recovered, allowed me to be part time.  At that time I was so thankful, and to some degree, I still am thankful today. 

But it was the first set back in my career for being chronically ill. I mean, I almost got fired. That's pretty big set up.  In this competitive industry, if I didn't have someone above me be empathetic about my plight, I would have been let go.  In fact, at any other tech company I would have been let go. Our industry is more competitive than it is empathetic. You ask, how do you know for sure if you were someplace else, you would have been fired?   Because it happened to my friend Emma. Her company basically fired her for being ill. Let me emphasis basically here; yes, there probably are nuances to her case. Overall though, her MS limited when and where she could work, and her company at the time didn't know how to define work within those parameters (I am hopeful that now they do).  There was no let's renew your FMLA or talk about going onto long term disability. They didn't have time to figure it; they had to get on with business.  

I understand their position, but it doesn't make it any easier to watch someone who loved being an engineer so much (and who you care about), shrink and wilt. So much so, that she thought she wouldn't be welcomed anymore in our very supportive female engineering society. She thought because she didn't officially have the title anymore, how could she be in our professional society? How could she attend society meetings without being an engineer?  She was fighting to get long term disability from the insurance her company carried, and her mother won Emma's case postmortem.  It was a bitter victory to say the least.

I've been told more than once from different managers, being a part time sicko employee, "Know that your career is limited," and "you'll have career growth, it will move more slowly."   Those statements are (unfortunately) correct.  Ever year as part of our performance assessments, we have to write down our long term goals.  Since 2008 (the year I started feeling better and went from 24 hours to 30 hours), I have written my long term goal as "project leader."  Managing a team has been a career goal for me for 8+ years.  I am a task lead, but I don't directly manage anyone.  To move up to the next level within my company, that level specifically calls out for supervisor/manager experience.

So the end of 2016 and yesterday (2017,) I explicitly wrote down that I want to be a supervisor and why I'd be a good supervisor. No vague project leader term (because you could possibly be a project leader without any direct reports/supervisees). I explicitly asked to run/manager team. And then I voiced my concern to my manager (in our one on one) about how my career growth feels limited if I don't have the opportunity to manage someone (even just one intern, how hard is it to give me one gosh shark intern?).  First time, it was our company, specifically our project, is not set up to manage a team remotely or part time.  Second time around, it was, well our project just doesn't have any teams to manage currently, but I'm willing to help you find that opportunity with another project, especially one set up around remote work.  

Okay cool, that's a fair answer. However, it showed what I already knew a couple of years ago (I mean after 8+ years of not reaching your long term goal, you start to get the hint that your career is stalled).  If I want my career to grow, I need to work on another project or leave the company.  I doubt I can shake the stigma of being a chronically ill engineer, so my best opportunity for job growth is to leave the company and work someplace else, where they don't know I'm a sicko.  

It's tough to see 2 engineers with 10 years of experience have the opportunity to be supervisors. Another engineer with 8 years become the manager of the test team and got his own office (while you're still in a cube). A different engineer with 4 years  of experience will be put on the project leader team this year. Another engineer with 2 years of experience is accepted onto the Engineering Leadership Program.  I'm not saying their opportunities aren't well deserved, because the opportunities are deserved, those people have worked hard; I'm just saying that I've worked hard too, so where's my opportunity for growth?  It's certainly not here.

The good news is that now that I have accepted that I have no room to grow at my current company, I'm no longer indifferent about the salary I make.  I know engineers make a lot of money compared to other professions, but when you're an engineering making 10K less than another engineer at the same level, it's one more indication of how being sick this industry really hurts your career. Real quick, my company pro-rates my salary, my salary is based on 40 hours/week. So technically if my performance reviews said I did a good job, then my 40 hours/week salary should be within hundreds of the other people who work 40 hours and who are within my level.  I have a feeling my counterparts don't make what I make, and if they did, why are they still here?  Our company (according to Glassdoor.com and Salary.com), are underpaying you!

Anyway, I feel that I can no longer be complaisant about my salary (not like I felt a year ago in The Salary). Sometime in the next 2 weeks I'm going to ask for the average salary of someone at my level. I feel like I owe it to all the sickos and other discriminated people out there.  By staying indifferent about my salary, I'm only hurt those around me.  I know, how unselfish of me.  Yes, I am doing it for myself too. It's important that I do it for me (my self-esteem could use the boost right now; I'm wallowing in my own pity party).  But somebody has to speak up for the disenfranchised, so I might as well speak up for them while I'm standing up for myself. And what do I have to lose? Job opportunities at my current company?  Oh wait, that's already in the toilet, so yeah I have nothing to risk by asking for more.  For the sicko club (it's like the Breakfast Club, but we're all napping in the library instead of dancing and sharing information about latest diet/treatment/medication instead of high school gossip), fist raised victoriously in the air!

So, the morale of the story?  Don't get sick in engineering. Your career depends on you staying healthy.  Take your vitamins. Exercise. Get your flu shots. For those of us who battle diseases and chronic illnesses. I promise to stay in this industry until my fingers are all gnarled and knotted and I can no longer type (but by then maybe the workplace will have cognitive software, think The Matrix, and I can just blink my TPS reports over to my boss, and I could stay even longer in this industry).  I know the longer I stay in this industry, the better I make it for others like me.  That's my promise to you: that through my trials and tribulations, I'll make this industry better for us all sickos. That one day, no one will measure your career by the number of sick days you took.  One day, it will be okay to be sick in engineering.

*1/7/17 Update: I've had 2 engineering friends who have auto immune diseases share with me their career struggles (aka stalling).  I deeply appreciate them sharing their stories with me.  And one even shared some statistics from this post.  I'm developing a secret hand shake for us sickos, so that we can advocate career advancement for each other in our industry. Is wincing in pain after shaking hands too spot on?  Take care!


Thursday, November 3, 2016

11/3/16- The MS

In the writing world, MS is an abbreviation for manuscript.  In technology, MS is an abbreviation for Master's of Science.  In the autoimmune disease realm, it's Multiple Sclerosis.  I know all 3 abbreviations well, but the one that has impacted my life the most, is Multiple Sclerosis. My friend Emma had Multiple Sclerosis.

It's been 4 years since Emma passed away, and I carefully choose my words when I talk to others (who did not know her personally) about her.  I tell them she lost her battle to MS. That is the truth.  It's the why.  I feel that in those couple of minutes conversation that is all they need to know- that I lost a good friend to MS.

But it is not the how.  Emma was struggling with MS and decided in January of 2012 to end her struggle.  She committed suicide and left a note to her parents, citing she wanted peace, to escape the unending pain of MS and the resultant depression.

I believe she was 24 when she received her diagnosis in 2007 or 2008.  It's hard for me to remember the details of her diagnosis because I was going through my own medical struggles from end of 2006 to beginning of 2008.  My own RA diagnosis came in  spring of 2008.  And in a way, Emma helped me get a diagnosis.

She came to a party that Bobby and I had in  late 2007 or early 2008 (again that time is blurry for me).  I told her at the party how I felt like I had the flu every day. I told her I was so fatigued and nauseated, but frustrated that the doctors (I've seen so far) couldn't figure out what was wrong with me. She told me about her own symptoms and how a doctor at the Mayo clinic diagnosed her with MS.  She suggested that my symptoms sounded similar to hers (the extreme fatigue) and that I should get a MRI to (hopefully) rule out MS.

I called an imaging place that performed MRI scans.  They asked me who the doctor was recommending this test.  I sheepishly said no doctor had ordered it, that it was me, but I really needed to know.  I was asking for this test before the act in Arizona where you, the patient, can order your own tests (at least blood tests, I'm not sure about MRIs).

I must have given a good speech because the worker said she'd assign a doctor to the test; one that they normally worked with.  I got the MRI, which lead to meeting the doctor (who the imaging place assigned).  He told me that everything was good/looked normal in the MRI. Then, we talked about my symptoms, and he tested me for Mono, Valley Fever, and RA.  I had Mono and a high RA Factor. The diagnosis of RA happened shortly after.

Emma gathered us for the Phoenix MS Walk in 2010

But I am digressing.  I am not angry at Emma for taking her own life.  I know how a disease can turn your mind dark. I battled my own depression while I struggled to figure out what was wrong with my health. Often thinking what I had was a mental illness- that I was making it all up.  Often wondering, at least when I die here shortly, they can perform an autopsy on me and find out what I have.  Days of just sleeping on the couch during the day. Not going to work.  Not doing anything. But getting lost in my own thoughts.

I know what it's to have an autoimmune disease and the depression that can follow, and I'm angry at myself for not recognizing her internal battle.  We had meet 2 weeks prior to her death, and she shared how she wanted to be more social; that she was feeling lonely.  I encouraged her to come to more SWE events and that I'd love her help with SWE outreach activities.  She said she didn't think she could because she was no longer an engineer (she had been fired by her company months before). I said, of course you can still be a part of SWE, because why else would SWE offer retired or unemployed memberships?   We later made plans to do dinner again, and she said she'd sign up to volunteer for one of the SWE events.

I feel that I failed to really hear what she was saying. That she was lonely and that she was hurting. My anger at myself is not as large as it was in 2012, but it is still there, broken tiny pieces residing deep in my heart. Then I feel disappointment in myself for being angry- well her death isn't about you! Tsk, tsk, as I scold myself.  After all, it's about her, and what she needed.  She needed peace.

The thought of knowing she found the peace she was looking for, it breaks my anger and guilt into even smaller pieces; the thought does comfort me. Then, I am able to remember all of our good times together, the memories floating happily in my mind, and the wonderful things about our friendship are there on the surface of my heart, overshadowing the anger and guilt.  You brought me joy and happiness my dear friend Emma, and I wish you the same.

In loving memory of Emma, I'm participating in the Phoenix MS Walk on November 5, 2016.  To learn more about MS, please visit: http://www.nationalmssociety.org/.  What to learn more about Emma?  Her blog (which to my delight, I found was still up and have enjoyed re-reading) is here: https://phern.wordpress.com/.

Phoenix MS Walk 2015